Tuesday, June 1, 2010

treatment...

I have not been able to work for the past 3 wks which is driving me crazy!!
Over all I'm doing good, radiation starts tomorrow and I'm already on a chemo pill at night. Anticipate losing my hair which will be hard for me but I'll get through it as long as I get the opportunity to grow old w/ JJ after it is all over. I may get my hair cut off this week, it will give me the illusion of having some control over this... I'll be getting a CT every 2 weeks or so in order for them to measure the tumor so we'll know if treatment is working or not; they are starting w/ a conservative treatment plan, don't want to pump me full of unnecessary drugs (which I agree with, they are treating it w/ Temador http://www.temodar.com/temodar/index.html which is a relatively new drug to treat brain tumors so far I have not had any side effects, hoping it will continue but I doubt that I'll be that lucky. Here's hoping... they put me on steroids which is miserable!!! I cannot imagine someone voluntarily doing this to themselves because the steroids have really messed up my blood-sugar but I'm learning to deal with it and to plan out my meals; if they keep me on this stuff much longer I'm going to gain 20 lbs because I am craving sweets and anything fried. I'll keep you posted :-)

6 comments:

  1. Hi Sandi...thinking of you today and hoping that your first radiation treatment goes as well as can be expected. Once you get through your first few radiation treatments and see how you feel, I'd love to visit again.

    ReplyDelete
  2. Best wishes Sandi ... prayers and thoughts for you.
    oxoxox
    Denalee

    ReplyDelete
  3. Thanks guys I'll post later today after the treatment and we'll see how it goes... not anticipating anything too traumatic

    ReplyDelete
  4. Treatment was ok... sort of tired after though. not looking forward to doing this every day, it will get old very fast!!

    ReplyDelete
  5. I understand about the steroids, I once took them for 2 straight Years for my Lupus!! I finally said, "Enough!" and weaned off them. But the side effects are atrocious! I think massage therapy weekly has done more for me than the steroids did! Sending gentle hugs and many prayers your way!!

    ReplyDelete
  6. I have not gained 20 lbs yet, only 8 :) weighed this AM and thought it would be more honestly. I am just amazed at how it is possible for me to always be hungry!!

    ReplyDelete